Cystic Fibrosis Sufferer Has Her Dream Wedding After Being Refused Organ Transplant



"We ride the wave of life together no matter how scary."








NBC 5 repots on Caleigh Haber, a 27-year-old with cystic fibrosis, who had a lung transplant but her body rejected the new organs. She needs a double lung transplant to live, but experts say she likely wouldn’t survive the procedure, and so they can't approve it.
That’s pretty much the worst thing you can hear as a transplant patient,” Caleigh told NBC 5.
As a result of this prognosis, I’m now left with the ‘fight or flight’ choice of what the next steps for my life should be - continue to work at changing centers’ minds to transplant me or live the rest of my days on my favorite Hawaiian island on palliative care,” she wrote on Facebook. “After a crazy, stressful, and busy 48 hours of high emotions and big decisions, Bryan and I have arrived home to sit down and brainstorm our options for our future. When you have a love as strong as we do one person’s downfall is also the others. We ride the wave of life together no matter how large or scary. So tonight we’ve devised a plan to put all our last eggs into living.”
Caleigh decided to marry her boyfriend, Bryan Takayama, 27, whom she met a year ago, and who is now helping her take care of herself since she's now in kidney failure, has lost a lot of weight, and is struggling to breathe.
To help plan and pay for the wedding, friends, loved ones, and strangers rallied around the couple via a GoFundMe page.
Basically every single thing for the wedding, we’ve got it donated, which is just absolutely shocking that so many people want to help and so many people want to bring awareness,” Caleigh said.

The pictures of the event are beyond lovely, and the couple looks gorgeous.






Getting ready for the big day looked like a blast, too:
Caleigh shared that she and Bryan aren't like other 27 year old couples, and that she faces “life or death decisions every day,” but that doesn't stop her from living. In fact, it makes her want to live more.
I love [Bryan] and I love our life so much there’s no possible way I can make the decision to stop,” she said.

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